UK guidelines recommend palliative care access for people with Parkinson's disease, however it remains sporadic. Using semi-structured interviews, participants were patients with advanced Parkinson's disease and their carers. The study found that access to specialist palliative care helped patients and carers cope in particular with managing uncertainty; impacts on the self; and maintaining a positive outlook.
Bader, N. 2018. Article: Impact of specialist palliative care on coping with Parkinson's disease: patients and carers. BMJ Supportive and Palliative Care 8 p 180 - 184.
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