Three cancer centres and associated palliative care services across England were the setting for this research which comprised of interviews and six workshops. 3 people aged 16 - 24 years and 30 people aged 25 - 40 years with a prognosis of under 12 months took part in this study along with family members and 47 healthcare professionals. The data revealed seven key themes which included loss of control; maintenance of normal life; support for families and importance of language chosen by professionals. The authors conclude current care towards end of life for young people and families doesn't meet needs and expectations.
Kenten, C. 2019. Understanding care when cure is not likely for young adults who face cancer: a realistic analysis of data from patients, families and healthcare professionals. BMJ, online
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