Thursday 19 September 2019

Article: Development of an eHealth information resource for family carers supportive a person receiving palliative care in Ireland

Many people receiving palliative care wish to die at home, however carers often report feeling underprepared to undertake this role. This paper describes the process of developing a consensus and evidence-based website to provide core information to help support carers/family members.     Content was developed by a Virtual Reference Group (VRG) comprising of patients, carers and professionals, along with subject exerts and a web developer. Nineteen systematic reviews  identified nine areas of core information required by carers.  These included a description of palliative care, prognosis and treatment of the condition, medication and pain management, personal care, specialist equipment, local support services, what to do in an emergency, nutrition, and support for the carer. 

Scott, D. 2019.  Development of an eHealth information resource for family carers supportive a person receiving palliative care in Ireland.   BMC Palliative Care:

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