This article provides a very good overview of the current symptom prevalence and management of cystic fibrosis, and prognosis. It discusses the importance of advance care planning and notes that end of life care, and support for families who have been bereaved is an area requiring further research and support.
Miller, M. 2020. Living and dying with cystic fibrosis. BMJ Supportive & Palliative Care, online
Contact the library for a copy